{"id":19655,"date":"2017-01-22T20:07:54","date_gmt":"2017-01-22T20:07:54","guid":{"rendered":"http:\/\/www.jomec.co.uk\/intercardiff\/?p=19655"},"modified":"2020-09-25T10:51:53","modified_gmt":"2020-09-25T09:51:53","slug":"see-cardiff-through-the-eyes-of-an-autistic-traveler","status":"publish","type":"post","link":"https:\/\/cardiffjournalism.co.uk\/intercardiff\/global-city\/see-cardiff-through-the-eyes-of-an-autistic-traveler","title":{"rendered":"See Cardiff Through the Eyes of an Autistic Traveler"},"content":{"rendered":"<p>It\u2019s a chill and sunny Saturday in December. The Cardiff Market is bustling with people in their hats and jackets, some sporting Wales scarves. Breath is seen as vapour in the chill air. An eight-year-old American boy, travelling with his parents, poses on the steps with his tongue out, hamming it up for a camera. His father is reading the menu at the cheese counter. His mother is scanning another booth for possible gifts. Wales&#8217; rugby team will be playing South Africa in a few hours&#8230; but these three will not be attending.<\/p>\n<p>They won\u2019t be attending the game\u00a0because Harry, the eight-year-old boy, is not interested in loud crowds or sports.\u00a0Harry has Asperger\u2019s syndrome, a disability on the autism spectrum. For him, watching a game in a stadium would be akin to torture.<\/p>\n<figure id=\"attachment_19693\" aria-describedby=\"caption-attachment-19693\" style=\"width: 625px\" class=\"wp-caption alignnone\"><img decoding=\"async\" loading=\"lazy\" class=\"wp-image-19693 size-medium\" src=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Harry_Crowd-625x349.jpg\" alt=\"Harry_Crowd_Autism\" width=\"625\" height=\"349\" \/><figcaption id=\"caption-attachment-19693\" class=\"wp-caption-text\"><noscript><img decoding=\"async\" class=\"wp-image-19693 size-medium\" src=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Harry_Crowd-625x349.jpg\" alt=\"Harry_Crowd_Autism\" width=\"625\" height=\"349\" \/><\/noscript> Harry follows his mom through Cardiff City Centre<\/figcaption><\/figure>\n<p>A rugby game in a large stadium is something they wouldn\u2019t even consider back home but travelling exposes people to new experiences, and new challenges. \u201cWe try to keep the routine as much as possible. But a learning experience is also to break that routine.\u201d Harry\u2019s dad, Matt, says.<\/p>\n<p>For people with Asperger\u2019s, overstimulation is problematic, which makes travelling a challenge. It\u2019s not just a noisy crowd, it\u2019s an augmented cacophony of sounds and a claustrophobic corral of human bodies. That&#8217;s because people with this disability don\u2019t have an information filter that someone who isn\u2019t on the autism spectrum would typically have.<\/p>\n<p>\u201cLots of people just block out whole swathes.\u201d Harry\u2019s mum, Mary says. \u201cYou block out all these people and you only see shops. You\u2019re sitting in a room of people at a coffee shop and you\u2019re talking to one person. You don\u2019t hear anything else. I believe Harry hears everything. He sees all those people. He sees the lights. He sees hawkers selling giant daisy faces. It\u2019s all a bit much.\u201d<\/p>\n<figure id=\"attachment_19741\" aria-describedby=\"caption-attachment-19741\" style=\"width: 320px\" class=\"wp-caption alignright\"><img decoding=\"async\" loading=\"lazy\" class=\"wp-image-19741 size-full\" src=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Roald_Dahl_Exhibit.jpg\" alt=\"Roald_Dahl_Exhibit\" width=\"320\" height=\"240\" srcset=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Roald_Dahl_Exhibit.jpg 320w, https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Roald_Dahl_Exhibit-300x225.jpg 300w, https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Roald_Dahl_Exhibit-100x75.jpg 100w\" sizes=\"auto, (max-width: 320px) 100vw, 320px\" \/><figcaption id=\"caption-attachment-19741\" class=\"wp-caption-text\"><noscript><img decoding=\"async\" class=\"wp-image-19741 size-full\" src=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Roald_Dahl_Exhibit.jpg\" alt=\"Roald_Dahl_Exhibit\" width=\"320\" height=\"240\" srcset=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Roald_Dahl_Exhibit.jpg 320w, https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Roald_Dahl_Exhibit-300x225.jpg 300w, https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Roald_Dahl_Exhibit-100x75.jpg 100w\" sizes=\"(max-width: 320px) 100vw, 320px\" \/><\/noscript> Harry with his mum outside the Roald Dahl exhibit in Millennium Centre<\/figcaption><\/figure>\n<p>Instead of the game, they went to see the Roald Dahl exhibit at Millennium Centre. The three of them have read handfuls of Roald Dahl\u2019s stories together over the years. For the most part, Harry enjoyed it.<\/p>\n<p>\u201cIt lets you learn about Roald Dahl while making it in a fun way,\u201d Harry says.<\/p>\n<p>In one of the rooms, &#8216;dream jars&#8217; hung outside an attic window. Audience members were invited to speak their dreams into a horn that was lodged into the wall. The jars would light up and twinkle at the sound.<\/p>\n<p>Harry did not share his dream. \u201cBut one of the funniest parts was when it really glowed when someone said bananas as a dream,\u201d he laughs.<\/p>\n<p>Until recently, Asperger\u2019s was a separate diagnosis to autism. In 2013, the DSM-V, the Diagnostic and Statistical Manual of Mental Disorders, merged Asperger\u2019s into A.S.D: autism spectrum disorder. This move was sparked by roughly ten years of advocacy work and research.<\/p>\n<p>Even then, Asperger\u2019s used to be seen as high-functioning autism. Now, there has been a shift from focusing on \u2018functioning levels\u2019 to \u2018communication profiles.\u2019 This means that instead of seeing people as \u201chigh-functioning\u201d or \u201clow-functioning,\u201d which assumes cognitive ability, the primary factor is how someone is able to communicate, and how reliable that communication is.<\/p>\n<p><iframe class=\"zeen-lazy-load-base zeen-lazy-load\" src=\"about:blank\" data-lazy-src=\"https:\/\/player.vimeo.com\/video\/200363785\" width=\"545\" height=\"300\" frameborder=\"0\" title=\"Asperger&#039;s Syndrome, Explained in One Minute\" webkitallowfullscreen mozallowfullscreen allowfullscreen><\/iframe><noscript><iframe src=\"https:\/\/player.vimeo.com\/video\/200363785\" width=\"545\" height=\"300\" frameborder=\"0\" title=\"Asperger&#039;s Syndrome, Explained in One Minute\" webkitallowfullscreen mozallowfullscreen allowfullscreen><\/iframe><\/noscript><\/p>\n<p>Elizabeth Stringer Keefe is a professor at Lesley University in Boston. She has been researching Autism for over 20 years.<\/p>\n<p>\u201cAlmost every approach to early intervention in autism in the U.S. involves a heavy approach to communication support, whatever that might be. Without reliable communication we\u2019re basically guessing at people\u2019s needs,\u201d Keefe says.<\/p>\n<p>Harry was diagnosed with Asperger\u2019s when he was four. His parents say their immediate response was to get him the help he needed. They researched schools that would better suit Harry\u2019s needs so that he has supported learning, which now includes advanced learning material on mathematics. They\u2019ve instilled daily routines that work with Harry\u2019s condition, with reminders of those rituals taped next to light switches.<\/p>\n<figure id=\"attachment_19694\" aria-describedby=\"caption-attachment-19694\" style=\"width: 625px\" class=\"wp-caption aligncenter\"><img decoding=\"async\" loading=\"lazy\" class=\"wp-image-19694 size-medium\" src=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Harry_Matt_Mary-625x349.jpg\" alt=\"Harry_Matt_Mary\" width=\"625\" height=\"349\" \/><figcaption id=\"caption-attachment-19694\" class=\"wp-caption-text\"><noscript><img decoding=\"async\" class=\"wp-image-19694 size-medium\" src=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Harry_Matt_Mary-625x349.jpg\" alt=\"Harry_Matt_Mary\" width=\"625\" height=\"349\" \/><\/noscript> Harry, Matt and Mary weave through crowds in Cardiff City Centre<\/figcaption><\/figure>\n<p>\u201cI think it adds to his personality a unique dimension and I don\u2019t want to erase that completely,\u201d Harry\u2019s dad, Matt says. \u201cBut I want to make him so he has a happier life. So I think we need to not eliminate those things but to\u2014\u201d<\/p>\n<p>\u201c\u2014Be able to fake it in society enough to get by,\u201d Mary says, finishing her husband\u2019s sentence. \u201cHe wouldn\u2019t be able to get ahead in the workforce. He would have a very difficult time in college\u2026. He just needs to fake the social skills. That\u2019s fine. More people should try to fake social skills.\u201d<\/p>\n<p>Their approach reflects new research on early intervention techniques for communication support. Families who received support learned methods of communicating with autistic family members that improved all parties\u2019 quality of life.<\/p>\n<p>\u201cHighly individualised approaches are really critical for people\u2019s communication development.\u201d Professor Keefe says. \u201cThe key is finding an approach that is motivating to the individual and helps them to prioritise their needs or articulated desires.<\/p>\n<p><a href=\"https:\/\/magic.piktochart.com\/output\/18475077-growing-up-with-autism\"><img decoding=\"async\" loading=\"lazy\" class=\"alignright wp-image-19746\" src=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/new-piktochart_18475077_957031ecfe6648a116a784005f4c13c0de7dd406-625x2815.jpeg\" alt=\"new-piktochart_18475077_957031ecfe6648a116a784005f4c13c0de7dd406\" width=\"220\" height=\"991\" \/><noscript><img decoding=\"async\" class=\"alignright wp-image-19746\" src=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/new-piktochart_18475077_957031ecfe6648a116a784005f4c13c0de7dd406-625x2815.jpeg\" alt=\"new-piktochart_18475077_957031ecfe6648a116a784005f4c13c0de7dd406\" width=\"220\" height=\"991\" \/><\/noscript><\/a>In Harry\u2019s case, the trouble is in tactful communication. \u201cI try to have Harry ask questions especially when it pertains particularly to him,\u201d Mary says. \u201cIf he wants a plug to plug in his phone, I will have him ask and now he knows if he asks more politely he is more likely to get a plug, which is what he wants.\u201d<\/p>\n<p>This comes up quite a bit while travelling, a pastime that connected Matt and Mary initially. \u201cOne\u00a0of the reasons we decided to have a child was that we could share all of the wonderful things that we found out here,\u201d Matt says.<\/p>\n<p>Plans changed when Harry\u2019s diagnosis became apparent, but they weren&#8217;t abandoned. His parents started by taking Harry with them to Iceland, a five-hour flight. They\u2019ve been to Europe and Britain with Harry before, but hadn\u2019t visited Wales until now.<\/p>\n<p>There are a few considerations they take into account when travelling with Harry. They prepare him with what he can expect, which Mary says is a balance between too much and too little information. They also consider his needs. Even though they landed in London, they stayed in a smaller town to rest, where it would be quieter and less hectic.<\/p>\n<p>Not only do Harry&#8217;s parents provide a forecast for their son, they alter their route to account for his interests, which don&#8217;t always match theirs. Incidentally, Harry and his father don\u2019t share the same love of art. Harry has a mathematical mind and a desire to go into engineering, something he says he decided on between the ages of two and three. However, Matt\u2019s background is in graphic design and he and Mary see great importance in creativity and culture.<br \/>\n\u201cI would hope it would be part of his existence to be creative in whatever he does,\u201d Matt says.<\/p>\n<p>\u201cOn the flip side,\u201d Mary says. \u201cIf you have to choose something for your child\u2026 starving artist? Successful engineer? Many people would say that being a successful engineer would be the most positive, good thing that you could possibly want. As opposed to a creative artist who was only successful after they were dead. So \u2013&#8221;<\/p>\n<p>\u201cSo the things we\u2019ve avoided are art museums,\u201d Matt says.<\/p>\n<p>Instead, one of the places they visited was Cardiff Castle, which to Harry was a fine piece of defensive engineering.<\/p>\n<p>\u201cWe could visualise it, and touch it, and feel it. It\u2019s not like a museum where you just look, look, look,\u201d he says. \u201cThere\u2019s an audio tour. It\u2019s like you listen to what\u2019s going on. You decide what you\u2019re going to listen to, but you should probably follow the [instructions].&#8221;<\/p>\n<p>&nbsp;<\/p>\n<p><iframe class=\"zeen-lazy-load-base zeen-lazy-load\" title=\"The Creative Side of Autism by Noelle Knowelle Evans\" width=\"1200\" height=\"400\" scrolling=\"no\" frameborder=\"no\" src=\"about:blank\" data-lazy-src=\"https:\/\/w.soundcloud.com\/player\/?visual=true&#038;url=https%3A%2F%2Fapi.soundcloud.com%2Ftracks%2F303997884&#038;show_artwork=true&#038;maxwidth=1200&#038;maxheight=1000&#038;dnt=1\"><\/iframe><noscript><iframe title=\"The Creative Side of Autism by Noelle Knowelle Evans\" width=\"1200\" height=\"400\" scrolling=\"no\" frameborder=\"no\" src=\"https:\/\/w.soundcloud.com\/player\/?visual=true&#038;url=https%3A%2F%2Fapi.soundcloud.com%2Ftracks%2F303997884&#038;show_artwork=true&#038;maxwidth=1200&#038;maxheight=1000&#038;dnt=1\"><\/iframe><\/noscript><\/p>\n<p>In other places where they\u2019ve travelled, Matt and Mary have explored some aspects of cities that they would have never considered before.<\/p>\n<p>\u201cI don\u2019t know that we would have gone to see the inner workings of the Tower Bridge or would have paid so much attention to the way the Eiffel Tower is built\u2026 and hydraulics and the scientific part of it so we\u2019re on the benefit of it too,\u201d Matt says.<\/p>\n<p>\u201cI\u2019m learning to look at the world in a different way through his eyes.\u201d<\/p>\n<p><iframe class=\"zeen-lazy-load-base zeen-lazy-load\" width=\"533\" height=\"300\" src=\"about:blank\" data-lazy-src=\"https:\/\/www.youtube.com\/embed\/CKYNR9M7DPA?feature=oembed\" frameborder=\"0\" allow=\"autoplay; encrypted-media\" allowfullscreen><\/iframe><noscript><iframe width=\"533\" height=\"300\" src=\"https:\/\/www.youtube.com\/embed\/CKYNR9M7DPA?feature=oembed\" frameborder=\"0\" allow=\"autoplay; encrypted-media\" allowfullscreen><\/iframe><\/noscript><\/p>\n<p>To learn more about Matt and Mary&#8217;s approach, see here:\u00a0<a href=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/INTERVIEW-TRANSCRIPT.pdf\">INTERVIEW TRANSCRIPT<\/a><\/p>\n<p>&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Travel may broaden the mind, but what about travelling with a child who has Asperger&#8217;s?<\/p>\n","protected":false},"author":441,"featured_media":19695,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[6],"tags":[429],"coauthors":[680],"class_list":["post-19655","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-global-city","tag-rugby"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.2 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>See Cardiff Through the Eyes of an Autistic Traveler - InterCardiff<\/title>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_GB\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"See Cardiff Through the Eyes of an Autistic Traveler - InterCardiff\" \/>\n<meta property=\"og:description\" content=\"Travel may broaden the mind, but what about travelling with a child who has Asperger&#039;s?\" \/>\n<meta property=\"og:url\" content=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/global-city\/see-cardiff-through-the-eyes-of-an-autistic-traveler\" \/>\n<meta property=\"og:site_name\" content=\"InterCardiff\" \/>\n<meta property=\"article:published_time\" content=\"2017-01-22T20:07:54+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2020-09-25T09:51:53+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/cardiffjournalism.co.uk\/intercardiff\/wp-content\/uploads\/sites\/12\/2017\/01\/Harry_Hamming-scaled.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"2560\" \/>\n\t<meta property=\"og:image:height\" content=\"1453\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Noelle E. 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