{"id":39284,"date":"2020-01-28T17:12:26","date_gmt":"2020-01-28T17:12:26","guid":{"rendered":"http:\/\/jomec.co.uk\/thecardiffian\/?p=39284"},"modified":"2020-01-28T17:12:26","modified_gmt":"2020-01-28T17:12:26","slug":"businesses-fundraise-for-womans-russian-ms-treatment","status":"publish","type":"post","link":"https:\/\/cardiffjournalism.co.uk\/thecardiffian\/2020\/01\/28\/businesses-fundraise-for-womans-russian-ms-treatment\/","title":{"rendered":"Businesses fundraise for woman\u2019s Russian MS treatment"},"content":{"rendered":"\n<p>Olivia Copner hopes to undergo chemotherapy-based stem cell procedure that will cost in excess of \u00a342,000<\/p>\n\n\n<div class=\"wp-block-image\"><figure class=\"aligncenter\"><img decoding=\"async\" width=\"720\" height=\"603\" loading=\"lazy\" src=\"https:\/\/jomec.co.uk\/thecardiffian\/wp-content\/uploads\/2020\/01\/83242370_1023674181338686_6064752829954785280_n.jpg\" alt=\"\" class=\"wp-image-39291\" srcset=\"https:\/\/cardiffjournalism.co.uk\/thecardiffian\/wp-content\/uploads\/sites\/9\/2020\/01\/83242370_1023674181338686_6064752829954785280_n.jpg 720w, https:\/\/cardiffjournalism.co.uk\/thecardiffian\/wp-content\/uploads\/sites\/9\/2020\/01\/83242370_1023674181338686_6064752829954785280_n-300x251.jpg 300w, https:\/\/cardiffjournalism.co.uk\/thecardiffian\/wp-content\/uploads\/sites\/9\/2020\/01\/83242370_1023674181338686_6064752829954785280_n-500x419.jpg 500w, https:\/\/cardiffjournalism.co.uk\/thecardiffian\/wp-content\/uploads\/sites\/9\/2020\/01\/83242370_1023674181338686_6064752829954785280_n-293x245.jpg 293w\" sizes=\"auto, (max-width: 720px) 100vw, 720px\" \/><noscript><img decoding=\"async\" width=\"720\" height=\"603\" src=\"https:\/\/jomec.co.uk\/thecardiffian\/wp-content\/uploads\/2020\/01\/83242370_1023674181338686_6064752829954785280_n.jpg\" alt=\"\" class=\"wp-image-39291\" srcset=\"https:\/\/cardiffjournalism.co.uk\/thecardiffian\/wp-content\/uploads\/sites\/9\/2020\/01\/83242370_1023674181338686_6064752829954785280_n.jpg 720w, https:\/\/cardiffjournalism.co.uk\/thecardiffian\/wp-content\/uploads\/sites\/9\/2020\/01\/83242370_1023674181338686_6064752829954785280_n-300x251.jpg 300w, https:\/\/cardiffjournalism.co.uk\/thecardiffian\/wp-content\/uploads\/sites\/9\/2020\/01\/83242370_1023674181338686_6064752829954785280_n-500x419.jpg 500w, https:\/\/cardiffjournalism.co.uk\/thecardiffian\/wp-content\/uploads\/sites\/9\/2020\/01\/83242370_1023674181338686_6064752829954785280_n-293x245.jpg 293w\" sizes=\"(max-width: 720px) 100vw, 720px\" \/><\/noscript><figcaption>Olivia Copner and mum, Jo Copner, will travel to Russia at the end of March.<\/figcaption><\/figure><\/div>\n\n\n<p>TWO Birchgrove businesses are teaming up to host a <a href=\"https:\/\/jomec.co.uk\/thecardiffian\/2020\/01\/31\/birchgrove-hairdressers-raise-1500-for-patients-trip-to-russia\/\">charity fundraising event<\/a> to help raise money for a local woman\u2019s multiple sclerosis treatment.&nbsp;<\/p>\n\n\n<p>Olivia Copner, 28, from Whitchurch, was diagnosed with an aggressive form of remitting relapsing MS in January 2016.&nbsp;&nbsp;<\/p>\n\n\n<p>MS is a neurological condition in which the immune system damages the brain and spinal cord.&nbsp;&nbsp;<\/p>\n\n\n<p>The immune system attacks a substance called myelin, which protects nerves and facilitates the spreading of information through the nervous system.&nbsp;&nbsp;<\/p>\n\n\n<p>Recalling the day of her diagnosis, Olivia\u2019s mum, Jo Copner, 61, said: \u201cI fainted. I went right out the minute I saw her starting to cry.&nbsp;<\/p>\n\n\n<p>\u201cThis was a child who had never had a day off sick in primary school.&nbsp;<\/p>\n\n\n<p>\u201cShe had an abundance of energy. Even as a small child we\u2019d be watching the TV I\u2019d have to ask her what she was doing and she\u2019d shout, \u2018I\u2019m learning how to body pop mum!\u2019&nbsp;<\/p>\n\n\n<p>\u201cShe was very active and sporty but unfortunately couldn\u2019t keep it up.&#8221;&nbsp;&nbsp;<\/p>\n\n\n<p>Olivia first experienced symptoms of extreme fatigue shortly after graduating from university with honours in 2015. <\/p>\n\n\n<p>She developed issues with her eyesight, suffering from split vision where she could see one half pink and the other a neutral colour.&nbsp;&nbsp;<\/p>\n\n\n<p>\u201cAt the moment Livy is walking. But this last week she\u2019s had what she described as itching inside of her skin. Like little needles being poked which are tingling and numbing at the same time,\u201d said Mrs Copner.&nbsp;&nbsp;<\/p>\n\n\n<p>Symptoms are unique to each person with the condition, as they depend on which particular nerves are damaged. They can vary from difficulties with walking and balance, to vision and emotions.&nbsp;&nbsp;<\/p>\n\n\n<p>Mrs Copner said: \u201cIt is a devastating disease because it is so unpredictable, and it is different in every single person \u2013 it\u2019s nicknamed the snowflake illness.\u201d&nbsp;<\/p>\n\n\n<p>The <a href=\"https:\/\/www.mssociety.org.uk\/care-and-support\/resources-and-publications\/publications-search\/ms-in-the-uk\" target=\"_blank\" rel=\"noreferrer noopener\">MS Society estimates<\/a> that more than 100,000 people in the UK live with the condition. Approximately 14 people are diagnosed with MS every day.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n<p>Olivia\u2019s auntie was previously diagnosed with the condition.&nbsp;&nbsp;<\/p>\n\n\n<p>Although the cause of the condition is unknown, research shows genetics and environmental factors, such as a lack of vitamin D, are relevant factors.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n<p>Women are two to three times more likely than men to develop the condition.&nbsp;<\/p>\n\n\n<p>Olivia is travelling to Russia in late March to receive haematopoietic stem cell transplantation (HSCT).&nbsp;<\/p>\n\n\n<p>HSCT is a chemotherapy-based treatment, which aims to reset the immune system &#8211; something that Olivia hopes will give her a fresh start. <\/p>\n\n\n<p>Stem cells are taken from an individual\u2019s bone marrow and reintroduced after chemotherapy has been used to wipe out the immune system.&nbsp;<\/p>\n\n\n<p>The fundraising event is being held to raise money to cover the cost of the treatment, which is likely to be in excess of \u00a342,000.&nbsp;&nbsp;<\/p>\n\n\n<p>HSCT is currently only available on the NHS in England for those meeting specific medical criteria and as a third line treatment. This means individuals will have to try two disease modifying therapies (DMTs), with no success, before being able to try HSCT.&nbsp;&nbsp;<\/p>\n\n\n<p>Olivia has had disease modifying injections for the past two years but suffered debilitating side effects.&nbsp;<\/p>\n\n\n<p>&nbsp;\u201cWhat would you do if it was your daughter? You would literally die yourself to give them a better life and it\u2019s so frustrating there\u2019s not more you can do,\u201d said Mrs Copner.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n<p><strong>A fundraising event has been organised by Aqua Hair Design and will be held at The New Inn, Caerphilly Road on Thursday, January 30 at 7.00pm.&nbsp;&nbsp;<\/strong><\/p>\n\n\n<p><strong>The evening will involve a pub quiz, a live singer and a raffle. Prizes include two tickets to a Cardiff City game, a spa day and treatments by Aqua Hair Design. Raffle tickets are on sale in the salon and on the night.&nbsp;&nbsp;<\/strong><\/p>\n\n\n<p><strong>All are welcome on the night. The Facebook event page with information can be found <\/strong><a href=\"https:\/\/www.facebook.com\/events\/478739599746560\/\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>here<\/strong><\/a><strong>.&nbsp;<\/strong><\/p>\n\n\n<p>A Just Giving page has been set up by Olivia\u2019s friends, a link to which can be found <a href=\"https:\/\/www.justgiving.com\/crowdfunding\/olivia-hsct?utm_term=MaPJp84gw&amp;fbclid=IwAR1j3Qyjzvy4MyMEnv1gZQY6wEgcPPuhpV1cQ7N7Ur0ueFy_T9ncYTqGspU\" target=\"_blank\" rel=\"noreferrer noopener\">here<\/a>, where donations are welcomed.&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Olivia Copner hopes to undergo chemotherapy-based stem cell procedure that will cost in excess of \u00a342,000 TWO Birchgrove businesses are teaming up to host a charity fundraising event to help raise money for a local woman\u2019s multiple sclerosis treatment.&nbsp; Olivia Copner, 28, from Whitchurch, was diagnosed with an aggressive form of remitting relapsing MS in January 2016.&nbsp;&nbsp; MS is a neurological condition in which the immune system damages the brain and spinal cord.&nbsp;&nbsp; The immune system attacks a substance called [&hellip;]<\/p>\n","protected":false},"author":100,"featured_media":39287,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_monsterinsights_skip_tracking":false,"_monsterinsights_sitenote_active":false,"_monsterinsights_sitenote_note":"","_monsterinsights_sitenote_category":0,"footnotes":""},"categories":[234,3,113,89],"tags":[233,235,236,13,237,238,239,240],"coauthors":[],"class_list":["post-39284","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-birchgrove","category-news","category-uncategorised","category-whitchurch","tag-birchgrove","tag-fundraiser","tag-fundraising","tag-health","tag-ms","tag-multiple-sclerosis","tag-stem-cell","tag-whitchurch"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v25.2 - 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